HNRNP Family Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The HNRNP Family Foundation is dedicated to improving the lives of patients & families around the world living with rare HNRNP-Related Neurodevelopmental Disorders (HNRNP-RNDDs). We work closely with dedicated scientists & the medical community to drive patient-centered research. We are committed to finding treatments & creating a neurodiverse affirming ​community through education & support. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.