Hope for Hypothalamic Hamartomas

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Hope for Hypothalamic Hamartomas drives education, support and research in this complex syndrome. We focus our efforts and funding on early detection, improved treatments, and managing HH as a complex medical syndrome with the goal of one day finding a cure. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.