Hope4Harper
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Hope4Harper is a 501c3 not for profit organization created to provide hope, through research and awareness, to those living with CDKL5 disorder and Life After CDKL5 Disorder. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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