Hunter’s Hope Heroes for Duchenne and DEGS1 Leukodystrophy

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Hunter’s Hope exists to reduce the stressors for local families affected by Duchenne Muscular Dystrophy and DEGS 1 Leukodystrophy by eliminating barriers to accessible resources, funding research to find effective treatments and improving community understanding of these rare diseases. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.