Indo US Organization for Rare Diseases (IndoUSrare)

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. With an initial focus on the Indian diaspora, our mission is to build cross-border collaborations to connect stakeholders of rare diseases in low- and middle-income regions—such as India—with their counterparts & clinical researchers in the US. This allows to improve the diversity of clinical trial participants, accelerates RnD, & improves equitable access to life-saving therapies. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.