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International Gaucher Alliance

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our vision is a world where all Gaucher patients can access the care they need and a cure is possible. We advocate for patients, promote research that meets their needs, empower our members, and take collective action to improve early diagnosis and equitable access to treatment worldwide. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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