International Society for Mannosidosis and Related Diseases

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. ISMRD is an internationally focused not-for-profit organization whose mission is to advocate for families and patients affected by, Alpha-Mannosidosis, Aspartylglucosaminuria, Beta-Mannosidosis, Fucosidosis, Galactosialidosis, Sialidosis (Mucolipidosis I), Mucolipidosis II, II/III, III alpha/beta, Mucolipidosis III Gamma, and Schindler Disease. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.