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Kadi Luchsinger

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We empower individuals living with dup15q syndrome and other related rare diseases to reach their full potential by advancing breakthrough research and life-changing therapeutic treatments, supporting families affected by dup15q, and promoting advocacy. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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