KBG Syndrome Association

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To further the cause of KBG Syndrome by spreading awareness, providing information on upcoming research or potential studies with firsthand updates as well as connecting families and organizations. We seek to enhance the lives of all those living with KBG Syndrome as we know first hand the challenges that may come living with KBG Syndrome. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.