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KCNMA1 Channelopathy International Advocacy Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We are a small organization with three main goals: 1. Educate patients, families, the public and the scientific community about KCNMA1-associated conditions 2. Encourage and promote efforts to find effective treatments for the wide range of symptoms which can be caused by KCNMA1 mutations 3. Help patients and families to form a supportive community and participate in our advocacy efforts Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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