L-CMD Research Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Inspired by our beautiful son Austin, this 501c3 nonprofit is dedicated to urgently translating scientific research into impactful treatments – and ultimately a cure – for L-CMD. Today we are one step closer to a tomorrow without LMNA-related congenital muscular dystrophy. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.