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Laryngeal Cleft Network

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Laryngeal Cleft Network promotes awareness, early diagnosis, and effective treatment of laryngeal clefts. We serve the laryngeal cleft community, which includes patients, families, medical providers and anyone touched by a laryngeal cleft diagnosis. We do this by offering an up-to-date website, spreading awareness, awarding travel grants, sharing hero journeys and research opportunities. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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