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Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our NPO, based in Austria is dedicating in advancing MECP2 Duplication Syndrome research and inform families. Our missions are: -Accelerate research projects via funding, collaboration, project branding -Inform families about research progresses, adapted therapies and support them psychologically -Raise awareness of rare diseases in general by organisaing events, posting on social media. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.