LGMD Awareness Foundation, Inc.

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. An advocacy organization dedicated to globally raising awareness of the rare neuromuscular diseases known as limb-girdle muscular dystrophy (LGMD). Our focus is to provide curated educational information and resources for the LGMD community – aiming to assist in advancing their genetic diagnosis, care, and treatment. We also coordinate an annual worldwide LGMD Awareness Day on September 30. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.