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LGMD2D Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Formed in September 2013, the LGMD2D Foundation is a registered 501(c)3 non-profit foundation built for families living with LGMD2D. Our mission is to expedite the development of treatments or a cure for LGMD, type 2D / R3. We educate patients/caregivers, own the only international LGMD2D registry, raise awareness, fund research for treatments, and partner to advocate for LGMD2D. lgmd2d.org Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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