Li Fraumeni Syndrome Association.org
Description
Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome. We support a consortium of researchers, medical providers, and caregivers to further research and promote optimal care for the LFS community. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.
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