Lightning and Love Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To raise awareness, advance scientific research through fundraising and advocacy, and find a cure for diseases caused from mutations in the THAP12 gene ultimately transforming the lives of those affected; and in turn helping change the landscape and providing knowledge and hope for all people living with ultra-rare diseases. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.