Lipodystrophy United

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to provide an interactive community, facilitated support, and education for anyone affected by lipodystrophy. We serve as a resource to increase awareness in the general, medical, and insurance communities. We advocate for new patient diagnosis by assisting healthcare professionals in understanding trends, physical attributes, and clinical symptoms to aid treatment and research. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.