Lysosomal Storage Disorders Support Society

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. LSDSS endeavors to transform the life of children affected by rare Lysosomal Storage Disorders. Our mission is to increase awareness about the prevention of such disorders in future offspring as well as counsel the affected patients and families on how to cope with existing conditions, ensuring no patient or family living with an LSD ever feels alone. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.