Malan Syndrome Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan syndrome in the global community through support, outreach and research. We aim to provide a broad network of support to families affected by Malan syndrome and help advance access to a diagnosis, promote knowledge development, awareness and sharing of information, explore research pathways to treatments and cures, as well as enhance understanding of Malan syndrome and related disorders. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.