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Marshall-Smith Syndrome Organization of the USA

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to provide support to individuals with Marshall-Smith Syndrome and their families by creating connection, raising awareness through advocacy, and increasing understanding of the ultra-rare disorder through research. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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