Maryland Alliance of PKU Families

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Maryland Alliance of PKU Families was started in 1994 by parents of children that have PKU to promote the health and well-being of persons with PKU. The inaugural event, Camp Huber for people with PKU and their families/support persons, combined educational experiences with networking and entertainment, where PKU food was on the menu and no explanations of diet were needed. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.