MED13L Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. 1. Coordinate and collaborate with the global scientific community to understand the function of the MED13L gene in order to develop effective treatments and a cure for MED13L syndrome. 2. Increase medical community and public awareness of the complexity and potential severity of MED13L syndrome. 3. Provide educational and emotional support for those affected. 4. Fundraise to support these goals. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.