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MEF2C Family Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We are a non-profit foundation that strives to connect, support, and empower families who have loved ones with MEF2C-related disorders. Through advocacy and awareness, we aim to connect clinicians, researchers, and biotech companies with our patient population to further education, research and treatment advancement. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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