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MTM-CNM Family Connection

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. MTM-CNM Family Connection, Inc., is a 501(c)(3) committed to connecting patients and families affected by Myotubular Myopathy (MTM) and Centronuclear Myopathies (CNM) to research, resources, and relationships. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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