My Kool Brother

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. My Kool Brother was founded with the goal of developing better medical therapies and treatment options for individuals with Koolen-de Vries Syndrome (KdVS). We hope to accomplish this by working directly with researchers and pharmaceutical companies. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.