My Rare Universe Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Provide support to rare disease patients by promoting education, donations, clinical trials, patient registries, and genetic testing for accurate diagnosis. Raise awareness and recognition of the physical, mental, financial and social challenges faced by rare disease patients. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.