Myrovlytis Trust

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Myrovlytis Trust aims to transform the outlook for rare conditions. With an initial focus on Birt-Hogg-Dubé syndrome and osteosarcoma, the trust strategically funds research directed towards new treatments. We want to ensure that patients gain access to the same state-of-the-art technologies, breakthroughs and therapies as those with more common disease. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.