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National Association of Porphyrias Serbia

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to support, educate, and advocate for porphyria patients in Serbia. We strive to raise awareness, improve diagnostic access, secure essential therapies, and collaborate nationally and internationally to enhance the quality of life for those affected by porphyrias. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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