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National Fragile X Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The National Fragile X Foundation has a mission to serve the entire Fragile X community to live their best lives by providing the knowledge, resources, and tools until, and even after, more effective treatments and a cure are achieved. We achieve this with the support and focus on our community through four strategic priority areas: Advocacy, Education, Research, and Treatment. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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