NCBRS Worldwide Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The NCBRS Worldwide Foundation is a nonprofit organisation that aims to support and educate families, carers and professionals who work with them. Together, we will work to promote awareness and understanding of the syndrome. We will advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.