Neuromuscular Disease Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The Neuromuscular Disease Foundation’s (NDF) mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding clinical research focused on treatments and a cure. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.