New Zealand Amyloidosis Patients Association

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. To make a positive and lasting impact in New Zealand, helping Amyloidosis disease patients from various disease subgroups ( AL, AA, hATTR, Wild Type) by working with local and international doctors, pharma treatment entities, as well as government agencies to bring approved funded treatment drugs into NZ for suffering patients. We desire to help build a lasting support system within the NZ health framework. We want an excellent wrap-around network of care to achieve for the sufferer to achieve a positive outcome in their well-being. This mission includes the wellness of the patient’s caregiver and family whose needs, we feel, have been neglected. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.