Ogden C.A.R.E.S.

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission at Ogden CARES is to empower affected families by providing resources and supporting research in pursuit of a cure for Ogden Syndrome. We strive to provide dedicated support to families impacted by this ultra rare disorder, raise awareness about Ogden Sybdrome, and build a reciprocal network throughout the rare disease community. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.