OPFORD Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. OPFORD.org (Open Platform for Rare Diseases) was conceived as a digital and online resource centre for orphan diseases with a primary focus of serving patients and caregivers by connecting them to curated resources regarding symptoms, causes, diagnosis and treatment. We have expanded our services to health counselling and guidance for patients and caregivers to prevent possible complications. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.