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OPMD Association

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Advocate for and serve the Oculopharyngeal Muscular Dystrophy (OPMD) Community by providing education, resources, and programs and by creating partnerships with researchers, medical institutions, nonprofits, and corporations to develop treatments and a cure for OPMD. STRATEGIC PURPOSE Advocate for the OPMD Community Facilitate the development and access to therapies and a cure for OPMD Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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