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Pediatric Brain Tumor Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Since 1991, the Pediatric Brain Tumor Foundation has led in funding research, supporting families, and advocating for policies to help patients and survivors. As the largest patient advocacy funder, it drives vital discoveries, new trials, and better treatments. Guided by patient and family experiences, PBTF supports families’ needs at every stage, focusing on care of the entire family. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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