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Perthes Kids Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Perthes Kids Foundation’s mission is to make an immediate, positive impact, on the lives of children diagnosed with Legg-Calvé-Perthes disease. We are the leading organization dedicated to a community of parents, kids, doctors, family members and adults with Perthes, from all over the world, working together to take action, advocate, educate, and support each other, as we fight this rare disease. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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