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Pompe Warrior Foundation

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of the Pompe Warrior Foundation is to promote research, educate, and empower individuals and families affected by Pompe Disease and other Lysosomal Storage Diseases. We hope to highlight the importance of diet in treating these diseases. We will support research into new dietary treatments and utilize that research to educate individuals and the medical community. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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