POU3F3 Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The POU3F3 Foundation is focused on supporting children and families affected by Snijders Blok-Fisher syndrome and advancing the work needed to better understand this POU3F3-related disorder. We support research, education, awareness, and collaboration with the aim of helping create a stronger path toward new therapies, including genetic therapies. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.