Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, (PFIC). We strive to equip patients and families with the educational and support resources they need to navigate life with a devastating disease, create a sense of community & hope for those affected by PFIC, and to support research that will one day lead to a cure. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.