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PSC Partners

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by this rare disease. We are a U.S.-based nonprofit with global reach via our international research grants, collaborations, international patient registry, and support of the of the PSC community. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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