PTEN UK and Ireland Patient Group

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The patient group’s purpose is to improve the lives of patients, parents and carers of all ages, in the United Kingdom and Ireland, who are affected by PTEN genetic alterations, through better patient support, increased awareness, more accurate and accessible information, earlier diagnosis and and intervention, greater research into treatment and prevention, and improved coordination of care. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.