PTLS Hope Research Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. The PTLS Hope Research Foundation advances research, raises awareness, and supports those affected by Potocki Lupski Syndrome (PTLS) by funding innovative research, increasing awareness, and fostering professional collaboration. PTLS, a rare genetic disorder affecting 1 in 20,000 individuals, presents complex challenges, including physical and intellectual disabilities. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.