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Rare Disease Ghana Initiative

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Rare Disease Ghana Initiative (RDGI) is a nonprofit organization in Ghana made up of multidisciplinary team of professionals, patients and their caregivers leading Advocacy and Coordinating Care for Undiagnosed and Rare Diseases in Ghana. RDGI has the mission to improve the wellbeing and quality of life of persons living with undiagnosed and rare diseases in Ghana. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

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Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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