Rare Disorders New Zealand

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. We provides a strong common voice to advocate for an equitable healthcare system that works for the 300,000 Kiwis with a rare condition. Our mission Amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder. To see New Zealand become a country where people living with rare disorders are fully recognised and supported, with equitable Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.