Rare Together Worldwide

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Rare Together Worldwide (RTW) is a 501(c)(3) patient-led advocacy group whose mission is to unite, support, and empower those living with Ultra-Rare Spinocerebellar Ataxia and their families while working with all stakeholders to advocate, educate, motivate, and help to improve the quality of life for everyone affected by Spinocerebellar Ataxia until a cure can be found. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.