RareDNA Foundation

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Dedicated to improving outcomes for individuals and families affected by rare DNA heart mutations by advancing awareness, access and action. We increase awareness among medical professionals and the public, provide education and resources on diagnosis and treatment, support scientific research, and advocate for faster diagnostic pathways, giving families the knowledge and care they need. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.