RareGen

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. RareGen is the first ever youth led organization with the goal of being international in the rare disease space. Our mission is to unite young voices globally, empowering them to advocate and drive transformative change within the rare disease community. Through our multiple initiatives, we address critical needs and provide invaluable support to individuals affected by rare diseases Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.