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Ring14 USA

Description

Global Genes Global Advocacy Alliance member focused on rare disease support, education, advocacy, or research. Ring14 USA is a non-profit organization dedicated to individuals affected by rare neurodevelopmental disorders on the 14th chromosome, particularly Ring14 Syndrome. We fund critical research, raise awareness, and thoughtfully support families. Ultimately, our mission is to improve the quality of life for these children and those who care for them by providing answers, community, and hope. Directory information only; not medical advice, legal advice, or endorsement. Services and eligibility should be confirmed with the organization.

Services Offered
Rare disease advocacy alliance member listing pending review.

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Author Info

matt.toresco@archo.io

Member since 8 months ago
  • matt.toresco@archo.io
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